I love the photo of Heni above in which she looks like she is playing the harp! It was taken when we celebrated her 8th birthday...almost 13 years ago. We had a garden party, food, friends in fun hats, a balloon release and even a harpist, who played us beautiful music to chill out to... and we were even favoured with fantastic weather. It was one of those times where you "mark the occasion"....making something memorable happen... a memory to look back on with fondness.
Because of Heni's diagnosis of Edwards Syndrome we have never really known how long she would be around; we have experienced multiple roller coaster rides where she (and we) hit the bottom and thought that it was the end of the ride....and we never ever expected that she would still be there with us back then at the party.
.....Even now all these years later, I never expected to be sitting here writing about her while she is fast asleep (having her routine afternoon nap after college)....AND In just five more months will hopefully be celebrating her 21st birthday!
