The hardest thing to cope with after
the death of a special needs child is adjusting to the lack of their
presence and love being in your home. After so many years of caring for
them.... the adjustment to their "void" and to a different "way" of
life is very slow and awkward.
It's
made harder by the mountain of equipment that's left behind... a living
memorial of that life, each and every day it remains there.
It's
not that you don't want to be reminded of your precious child... you
do...you want to remember every smile, every sound, every hug and nuance
of who they were... AND be reminded of the joy, the lessons and the
good times that they brought to you.
What
you don't want, is the remembrance of all the fights for care and
equipment.... and the headaches and energy spent on trying to source and
meet those needs...
Having to walk daily past a room still full of those reminders is painful.
You would think that almost 6 weeks later it would all be gone... picked up... moved on to those still in need..... re-circulated to other families who are fighting and searching to meet their own child's care and equipment needs.
For us, that wait continues....we are STILL waiting for the varying "relevant" departments to come pick up the pieces of equipment they supplied....
Having to walk daily past a room still full of those reminders is painful.
You would think that almost 6 weeks later it would all be gone... picked up... moved on to those still in need..... re-circulated to other families who are fighting and searching to meet their own child's care and equipment needs.
For us, that wait continues....we are STILL waiting for the varying "relevant" departments to come pick up the pieces of equipment they supplied....
....But also, it is a process of us getting together the mental and physical energy to deal with some of the "other bits" (that belong to us), that we want to and need to sell on.
I
don't normally sell anything from this blog... it's just a tool for my
musings, thoughts and learning from life on how to maintain balance
amid challenges... but today I hope you will humour me as I put out an
advertisement for some of the equipment we bought, that we need to let go of....
and that we hope will make someone else's life easier.
I
realise that this is probably very irrelevant for any readers anywhere
other than those who live in England...although, I hope that perhaps you "other readers" may
like the look of a piece and be motivated to source your own from
somewhere nearer to you!
Here are the three items for sale:-
1. Pacific bath/ shower trolley by Dolphin..... bought for almost 6,000.00 (pounds) and only filled with water once to trial it.... never used after this as we couldn't find a plumber to adapt our utility room : (
All details can be found in my blog post on special needs equipment- Henis new bath!
There is a pdf link to all specifications here http://www.dolphinlifts.co.uk/images/library/documents/Shower_Bath_Leaflet.pdf offers in the region of 4,500 ...
It is "as new" and in pristine condition.
2.
Tumble form car/airline seat FAA approved for airline travel. Used on
about three trips. light weight, very durable, great condition. Has all
the dimensions on the pictures attached. Originally around 800 pounds new ...
Asking around 400
3. Independence max special needs buggy which is suitable for a growing child. It Has
two foot-well options which can extend the length. Currently has the
longer foot-well on it. Also has two sizes of rain cover (one to fit
each foot-well). It includes a sheepskin and tyre pump.
Original details of the buggy are found here:- Independence MAX Special Needs Pushchair In very good condition... even after some lovely walks! Originally 795.00 pounds... asking 450.00
You can see it featured in a number of posts here on the blog Walking with wheelchairs - Wilstone /Tringford/ Startops reservoirs and
You can see it featured in a number of posts here on the blog Walking with wheelchairs - Wilstone /Tringford/ Startops reservoirs and
Walking with wheelchairs - Grasmere Lake from Rydal Car park.
These
are all big items, so ideally a "pick up" is required... if not, shipping costs
would be in addition. You are
very welcome to view these items. Please get in touch via facebook message
I
know that there are some families out there that can really benefit from these
pieces and I hope this post can find those special individuals to whom this equipment can be of use.
I
just want to thank you all for taking the time to read this and hope
you will continue to support me in my next focus in the coming months ahead.....of trying to find a
"new balance" amid the challenge of now learning to live without Heni.
Thanks so much ...
Jx
| P.S. Hopefully "The System" will get its act together and come pick up their bits real soon too! |
Love reading your blog Jade and thank you for sharing your thoughts and life with us xx
ReplyDeleteI am so sorry for your loss. My sister-in-law has a 32 year old special needs child. I have learned what true selfless loving and giving is from her life. She does not expect her precious daughter to live a normal lifespan. Reading your post reminds me of what she will go through one day. Thank you for opening up your life to the rest of us to example agape love in action. Bless you sister as God helps and comforts you in this new norm.
ReplyDeleteSorry for your loss xx I my self am a special needs mummy and only wish I had the money to buy your bath I know my son would love this xx I hope you manage to sell you things xx
ReplyDeleteJade, i am so very sorry for your loss. It is so heartfelt and brings the real reality of life and loss of having a special needs child and every aspect of it. It has truly touched me as another mum with a special needs son. I hope that in time you will find some comfort. x
ReplyDelete