The hardest thing to cope with after
the death of a special needs child is adjusting to the lack of their
presence and love being in your home. After so many years of caring for
them.... the adjustment to their "void" and to a different "way" of
life is very slow and awkward.
It's
made harder by the mountain of equipment that's left behind... a living
memorial of that life, each and every day it remains there.
It's
not that you don't want to be reminded of your precious child... you
do...you want to remember every smile, every sound, every hug and nuance
of who they were... AND be reminded of the joy, the lessons and the
good times that they brought to you.
What
you don't want, is the remembrance of all the fights for care and
equipment.... and the headaches and energy spent on trying to source and
meet those needs...
Having to walk daily past a room still full of those reminders is painful.
Having to walk daily past a room still full of those reminders is painful.

