Twenty years ago today we were waiting anxiously... wondering if we would ever get to meet our little Henibean....alive.... as we had been warned by doctors that trisomy 18 (Edwards Syndrome) was incompatible with life.
Today we have been celebrating Heni's 20th birthday...
We never would have imagined at the beginning of those 20 years that she would be here right now and that she would still be gracing our lives with her presence.
Today my post is a tribute and a birthday wish to our little Henibean....
Why Henibean?
I mentioned in my introduction that I have four children. My second eldest is a girl named Heni. Hence my nickname for her being Henibean. She is super cute and super special in more ways than one. She is a little miracle. In July we will hopefully be celebrating her 20th birthday. This is no mean feat considering that she has Edwards Syndrome (Trisomy 18...full form) and considering the statistics have always been against her!
Live birth prevalence is 2.3 babies per 10,000 births. Only 9% diagnosed pre-term make it to birth. Sadly most babies with Edwards are usually miscarried.
